Resources

Resources from, A Chance to Say Goodbye

“As long as you live, keep learning how to live.” ~Seneca

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Books

Caregiver Support

Jacobs, Barry J., PsyD. The Emotional Survival Guide for Caregivers: Looking After Yourself and Your Family While Helping an Aging Parent. New York: Guilford Press, 2006.

Rosenberger, Peter. Hope for the Caregiver: Encouraging Words to Strengthen Your Spirit. Brentwood, Tennessee: Worthy Inspired, 2014.

Grief/Grieving

Karnes, Barbara, R.N. My Friend, I Care: The Grief Experience. Pamphlet edition: Barbara Karnes, 1991.

Kübler-Ross, Elisabeth and David Kessler. On Grief and Grieving: Finding the Meaning of Grief Through the Five Stages of Loss. New York: Scribner, 2014.

Kumar, Sameet M., PH.D. Grieving Mindfully: A Compassionate and Spiritual Guide to Coping with Loss. Oakland, California: New Harbinger Publications, Inc., 2005.

Organizing/Dealing with Clutter

Jay, Francine. The Joy of Less: A Minimalist Guide to Declutter, Organize, and Simplify. San Francisco: Chronicle Books, 2016.

Kingston, Karen. Clear your Clutter with Feng Shui. New York: Broadway Books, 1999.

Kondo, Marie. The Life-Changing Magic of Tidying Up: The Japanese Art of Decluttering and Organizing. New York: Ten Speed Press, 2014.

Kondo, Marie. Spark Joy: An Illustrated Master Class on the Art of Organizing and Tidying Up. New York: Ten Speed Press, 2016.

St. James, Elaine. Simplify Your Life: 100 Ways to Slow Down and Enjoy the Things That Really Matter. New York: Hachette Books, 1994.

The Dying Process

Kalina, Kathy. Midwife For Souls: Spiritual Care For The Dying. Boston: Pauline Books & Media, 2006.

Karnes, Barbara, R.N. End of Life Guideline Series: A Compilation of Barbara Karnes Booklets [Gone From My Sight: The Dying Experience, The Eleventh Hour: A Caring Guideline for the Hours to Minutes Before Death, A Time to Live: Living with a Life-Threatening Illness]. Amazon Digital Services, 2012.

End-of-Life Issues

Butler, Katy. Knocking on Heaven’s Door: The Path to a Better Way of Death. New York: Scribner, 2014.

Byock, Ira, M.D. Dying Well: Peace and Possibilities at the End of Life. New York: Riverhead Books, 1998.

Byock, Ira, M.D. The Best Care Possible: A Physician’s Quest to Transform Care Through the End of Life. New York: Avery, 2013.

Byock, Ira, M.D. The Four Things That Matter Most: A Book About Living. New York: Atria Books, 2014.

Feldman, David B., PH.D., S. Andrew Lasher, Jr., M.D. The End-of-Life Handbook: A Compassionate Guide to Connecting with and Caring for a Dying Loved One. Oakland, California: New Harbinger Publications, 2008.

Gawande, Atul, M.D. Being Mortal: Medicine and What Matters in the End. New York: Metropolitan Books, 2014.

Smith, Fran and Sheila Himmel. Changing the Way We Die: Compassionate End-of-Life Care and the Hospice Movement. Berkeley: Viva Editions, 2013.

Volandes, Angelo E., M.D. The Conversation: A Revolutionary Plan for End-Of-Life Care. New York: Bloomsbury USA, 2015.

Webb, Marilyn. The Good Death: The New American Search to Reshape the End of Life. New York: Bantam, 1999.

Williams-Murphy, Monica, M.D. and Kristian Murphy. It’s Ok to Die. MKN, LLC, 2011.

Spiritual

Hawkins, David R. Letting Go: The Pathway to Surrender. Carlsbad, California: Hay House, Inc., 2012.

Newton, Michael, PH.D. Journey of the Souls: Case Studies of Life Between Lives. St. Paul: Llewellyn Publications, 1996.

Newton, Michael, PH.D. Destiny of the Souls: New Case Studies of Life Between Lives. St. Paul: Llewellyn Publications, 2000.

Rushnell, SQuire. When GOD Winks at You: How God Speaks Directly to You Through the Power of Coincidence. Nashville: Thomas Nelson, 2006.

Singer, Michael A. The Untethered Soul: The Journey Beyond Yourself. Oakland, California: New Harbinger Publications/ Noetic Books, 2007.

Wyatt, Karen, M.D. What Really Matters: 7 Lessons for Living from the Stories of the Dying. New York: SelectBooks, Inc., 2011.

Wyatt, Karen M.D. The TAO of Death: The Secret of a Rich & Meaningful Life. CreateSpace Independent Publishing Platform, 2016.

Miscellaneous

Brown, Brené. Daring Greatly: How the Courage to Be Vulnerable Transforms the Way We Live, Love, Parent, and Lead. New York: Avery, 2015.

Cohen, Kerry. The Truth of Memoir: How to Write About Yourself and Others with Honesty, Emotion, and Integrity. Blue Ash, Ohio: Writer’s Digest Books, 2014.

Brokaw, Tom. The Greatest Generation. New York: Random House Trade Paperbacks, 2005.

Websites

End-of-Life Issues

www.agingwithdignity.org ~ Aging with Dignity is a national nonprofit organization with a mission to affirm and safeguard the human dignity of individuals as they age and to promote better care for those near the end of life.

www.bkbooks.com/blog ~ Something to Think About: a blog on end of life by Barbara Karnes.

www.changingthewaywedie.com ~ Website about the book, Changing the Way We Die, with additional resources.

www.angelovolandes.com ~ Physician advocate for end-of-life conversations.

www.theconversationproject.org ~ The Conversation Project is dedicated to helping people talk about their wishes for end-of-life care.

www.theconversationbook.org ~ Video link advocating conversation and the three options of life-prolonging care, limited medical care, and comfort care.

http://deathoverdinner.org/ ~ The creators have gathered dozens of medical and wellness leaders to cast an unflinching eye at end of life and created an uplifting interactive adventure that transforms this seemingly difficult conversation into one of deep engagement, insight, and empowerment.

www.irabyock.org ~ Dr. Ira Byock is a leading palliative care physician, author, and public advocate for improving care through the end of life.

www.karenwyattmd.com ~ Her book, What Really Matters: 7 Lessons for Living from the Stories of the Dying, details her experiences as a hospice physician. Her book, The TAO of Death: The Secret of a Rich & Meaningful Life provides reflective wisdom and spirituality of the dying process.

www.eoluniversity.com ~ Resources and inspiration for the end of life.

www.oktodie.com ~ Their mission is to create conditions in which people: plan ahead, make their peace, understand that it is okay to die naturally, and make educated choices, which allow them to pass away peacefully and comfortably surrounded by those who love them most.

www.prepareforyourcare.org ~ A website that assists with making medical decisions for yourself and others, talk with your doctors, and get the medical care that is right for you.

www.codaalliance.org ~ The Coda Alliance is dedicated to helping you comfortably deal with one of life’s most difficult situations—starting your end-of-life conversation. Check out the “Go Wish Game.”

Forms/Planning for Death

www.mydirectives.com ~ MyDirectives makes it easy to create a state-of-the-art emergency, critical, and advance care plan.

www.caringinfo.org ~ CaringInfo, a program of the National Hospice and Palliative Care Organization, provides free resources to help people make decisions about end-of-life care and services before a crisis.

Palliative Care and Hospice

www.getpalliativecare.org ~ Information and resources for palliative care.

www.nhpco.org ~ National Hospice and Palliative Care Organization, 800-658-8898

www.aarp.org/families/end_life ~ AARP End of Life Resources

Grief and Loss Resources ~ 888-687-2277

Funeral/Celebration of Life Information

www.funerals.org ~ Funeral Consumers Alliance, 800-765-0107

www.nfda.org ~ National Funeral Directors Association, 800-228-6332

www.homefuneralalliance.org ~ National Home Funeral Alliance: This is the place to find information about home funerals, including directories for where to find home funeral guides, home funeral education programs, home-funeral-friendly funeral directors, celebrants, clergy, and groups who will help families when needed.

www.greenburialcouncil.org ~ Green Burial Council believes burial is “green” only when it furthers legitimate environmental and societal aims, such as protecting worker health, reducing carbon emissions, conserving natural resources, and preserving habitat.

www.greenburialnaturally.org ~ Green Burial Naturally: State-By-State Where, How, and Why to Choose Green Burial.

www.celebrationsoflife.net ~ Their mission is to provide a meaningful Legacy Journey® experience to help individuals and families live their lives with intention and share their values, wisdom, and generosity with loved ones and future generations.

Miscellaneous

https://www.ncoa.org/healthy-aging/falls-prevention/ ~ Information online about Falls Prevention by the National Council on Aging.

http://www.aging.com/falls-fact-sheet/ ~ National Council on Aging Care’s fact sheet

http://www.gowish.org ~ The Go Wish Game

http://www.bankrate.com/finance/debt/request-credit-freeze-for-deceased.aspx#ixzz3tHcYGuCW ~ How to request a credit freeze for the deceased.

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Perhaps a few of these resources called to you. To read a more in-depth review of each book, visit and follow Lisa on Goodreads. If you have found or read any books or articles that you believe would be good additions to this list, please contact me. This resources list is ever-expanding and updated thanks to the suggestions of my readers and further research since the book’s publication.