Resources from, A Chance to Say Goodbye

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Caregiver Support

Jacobs, Barry J., PsyD. The Emotional Survival Guide for Caregivers: Looking After Yourself and Your Family While Helping an Aging Parent. New York: Guilford Press, 2006.

Rosenberger, Peter. Hope for the Caregiver: Encouraging Words to Strengthen Your Spirit. Brentwood, Tennessee: Worthy Inspired, 2014.


Karnes, Barbara, R.N. My Friend, I Care: The Grief Experience. Pamphlet edition: Barbara Karnes, 1991.

Kübler-Ross, Elisabeth and David Kessler. On Grief and Grieving: Finding the Meaning of Grief Through the Five Stages of Loss. New York: Scribner, 2014.

Kumar, Sameet M., PH.D. Grieving Mindfully: A Compassionate and Spiritual Guide to Coping with Loss. Oakland, California: New Harbinger Publications, Inc., 2005.

Wolfelt, Alan D., Ph.D. Understanding Your Grief: Ten Essential Touchstones for Finding Hope and Healing Your Heart. Ft. Collins, Companion Press, 2003.

Organizing/Dealing with Clutter

Becker, Joshua. The More of Less: Finding the Life You Want Under Everything You Own. New York: Waterbrook, 2016.

Becker, Joshua. The Minimalist Home: A Room-by-Room to a Decluttered, Refocused Life. New York: Waterbrook, 2018.

Carver, Courtney. Soulful Simplicity: how living with less can lead to so much more. New York: TarcherPerigee, 2017.

Green, Melva, Dr. and Rosenfeld, Lauren. Breathing Room: Open Your Heart by Decluttering Your Home. New York: Atria Books/Beyond Words, 2014.

Hall, Julie. The Boomer Burden: Dealing with your Parent’s Lifetime Accumulation of Stuff. Nashville: Thomas Nelson, 2012.

Jay, Francine. The Joy of Less: A Minimalist Guide to Declutter, Organize, and Simplify. San Francisco: Chronicle Books, 2016.

Kingston, Karen. Clear your Clutter with Feng Shui. New York: Broadway Books, 1999.

Kondo, Marie. The Life-Changing Magic of Tidying Up: The Japanese Art of Decluttering and Organizing. New York: Ten Speed Press, 2014.

Kondo, Marie. Spark Joy: An Illustrated Master Class on the Art of Organizing and Tidying Up. New York: Ten Speed Press, 2016.

Magnusson, Margareta. The Gentle Art of Swedish Death Cleaning: How to Free Yourself and Your Family from a Lifetime of Clutter. New York, Scibner, 2018.

Shultz, Lisa J. Lighter Living: Declutter. Organize. Simplify. Breckenridge, Colorado, High Country Publications, 2019.

St. James, Elaine. Simplify Your Life: 100 Ways to Slow Down and Enjoy the Things That Really Matter. New York: Hachette Books, 1994.

The Dying Process

Kalina, Kathy. Midwife For Souls: Spiritual Care For The Dying. Boston: Pauline Books & Media, 2006.

Karnes, Barbara, R.N. The Final Act of Living, Barbara Karnes Books, Inc., 2012.

Karnes, Barbara, R.N. End of Life Guideline Series: A Compilation of Barbara Karnes Booklets [Gone From My Sight: The Dying Experience, The Eleventh Hour: A Caring Guideline for the Hours to Minutes Before Death, A Time to Live: Living with a Life-Threatening Illness]. Amazon Digital Services, 2012.

End-of-Life Issues

Anderson, Megory. Sacred Dying: Creating Rituals for Embracing the End of Life. New York: Marlowe & Company, 2003.

Butler, Katy. Knocking on Heaven’s Door: The Path to a Better Way of Death. New York: Scribner, 2014.

Butler, Katy. The Art of Dying Well: A Practical Guide to a Good End of Life. New York: Scribner, 2019.

Byock, Ira, M.D. Dying Well: Peace and Possibilities at the End of Life. New York: Riverhead Books, 1998.

Byock, Ira, M.D. The Best Care Possible: A Physician’s Quest to Transform Care Through the End of Life. New York: Avery, 2013.

Byock, Ira, M.D. The Four Things That Matter Most: A Book About Living. New York: Atria Books, 2014.

Doughty, Caitlin. Smoke Gets in Your Eyes: And Other Lessons from the Crematory. New York: W.W. Norton & Company, Inc. 2015.

Feldman, David B., PH.D., S. Andrew Lasher, Jr., M.D. The End-of-Life Handbook: A Compassionate Guide to Connecting with and Caring for a Dying Loved One. Oakland, California: New Harbinger Publications, 2008.

Gawande, Atul, M.D. Being Mortal: Medicine and What Matters in the End. New York: Metropolitan Books, 2014.

Hebb, Michael. Let’s Talk About Death Over Dinner: An Invitation and Guide to Life’s Most Important Conversations. New York, Da Capo Press, 2018.

Jenkinson, Stephen. Die Wise: A Manifesto for Sanity and Soul. Berkeley, California, North Atlantic Books, 2015.

Landry, Roger, MD, MPH. Live Long, Die Short: A Guide to Authentic Health and Successful Aging. Austin, Texas, Greenleaf Book Group, LLC. 2014.

Marcus, Erin. Talking about the End is Only the Beginning: Conversations Every Child Must Have with Their Aging Parents. Evanston, Illinois: MHP Publishing, 2015.

Mitford, Jessica. The American Way of Death-Revised. New York: Vintage Books, 1998.

Puri, Sunita. That Good Night: Life and Medicine in the Eleventh Hour. New York, Penguin Random House, 2019.

Roach, Mary. Stiff: The Curious Lives of Human Cadavers. New York, W.W. Norton & Company, 2003.

Safer, Jeanne, Ph. D., Death Benefits: How Losing a Parent Can Change an Adult’s Life-For The Better. New York: Basic Books, 2008.

Shultz, Lisa J. A Chance to Say Goodbye: Reflections on Losing a Parent. Breckenridge: High Country Publications, 2017.

Smith, Fran and Sheila Himmel. Changing the Way We Die: Compassionate End-of-Life Care and the Hospice Movement. Berkeley: Viva Editions, 2013.

Volandes, Angelo E., M.D. The Conversation: A Revolutionary Plan for End-Of-Life Care. New York: Bloomsbury USA, 2015.

Webb, Marilyn. The Good Death: The New American Search to Reshape the End of Life. New York: Bantam, 1999.

Williams-Murphy, Monica, M.D. and Kristian Murphy. It’s Ok to Die. MKN, LLC, 2011.

Windrum, Bart. The Promised Landing: A Gateway to Peaceful Dying. Axiom Action, 2018.

Zitter, Jessica Nutik., M.D. Extreme Measures: Finding a Better Path to the End of Life. New York, New York: Avery Publishing Group, 2017.


Dupree, Ulrich E. Ho’oponopono: The Hawaiian Forgiveness Ritual as the Key to Your Life’s Fulfillment, Forres, Scotland, Earthdancer Books, 2012.

Hawkins, David R. Letting Go: The Pathway to Surrender. Carlsbad, California: Hay House, Inc., 2012.

Newton, Michael, PH.D. Journey of the Souls: Case Studies of Life Between Lives. St. Paul: Llewellyn Publications, 1996.

Newton, Michael, PH.D. Destiny of the Souls: New Case Studies of Life Between Lives. St. Paul: Llewellyn Publications, 2000.

Ostaseski, Frank. The Five Invitations: Discovering What Death Can Teach Us About Living Fully. New York: Flatiron Books, 2017.

Rushnell, SQuire. When GOD Winks at You: How God Speaks Directly to You Through the Power of Coincidence. Nashville: Thomas Nelson, 2006.

Singer, Michael A. The Untethered Soul: The Journey Beyond Yourself. Oakland, California: New Harbinger Publications/ Noetic Books, 2007.

Tuttle, Will. The World Peace Diet: Eating for Spiritual Health and Social Harmony. New York: Lantern Books, 2016.

Wyatt, Karen, M.D. What Really Matters: 7 Lessons for Living from the Stories of the Dying. New York: SelectBooks, Inc., 2011.

Wyatt, Karen M.D. The TAO of Death: The Secret of a Rich & Meaningful Life. CreateSpace Independent Publishing Platform, 2016.

Miscellaneous Books

Bava, Rick. In Search of the Baby Boomer Generation. Motivational Press, 2015.

Brokaw, Tom. The Greatest Generation. New York: Random House Trade Paperbacks, 2005.

Brown, Brené. Daring Greatly: How the Courage to Be Vulnerable Transforms the Way We Live, Love, Parent, and Lead. New York: Avery, 2015.

Buettner, Dan. The Blue Zones: 9 Lessons For Living Longer from the People Who’ve Lived the Longest, Washington, D.C.: National Geographic Partners, 2012.

Cohen, Kerry. The Truth of Memoir: How to Write About Yourself and Others with Honesty, Emotion, and Integrity. Blue Ash, Ohio: Writer’s Digest Books, 2014.

Cowley, Lisa and Westgate, Victor. Pack Lightly: Making Sense of the Second Half of Your Life. Guilford, New York: Wood Turtle Press, 2020.

Lesser, Elizabeth. Marrow: Love, Loss and What Matters Most. New York: Harper Collins, 2016.

Williamson, Marianne. Tears to Triumph. New York: Harper Collins, 2016.


End-of-Life University Book Lists

Goodreads End-of-Life Book List


End-of-Life Issues ~ Aging with Dignity is a national nonprofit organization with a mission to affirm and safeguard the human dignity of individuals as they age and to promote better care for those near the end of life. ~ Something to Think About: a blog on end of life by Barbara Karnes. ~ Website about the book, Changing the Way We Die, with additional resources. ~ Physician advocate for end-of-life conversations. ~ The Conversation Project is dedicated to helping people talk about their wishes for end-of-life care. ~ Video link advocating conversation and the three options of life-prolonging care, limited medical care, and comfort care. Ask a Mortician, videos from a mortician who wants to answer your questions. Death Cafe, “At a Death Cafe people, often strangers, gather to eat cake, drink tea and discuss death. Our objective is ‘to increase awareness of death with a view to helping people make the most of their (finite) lives’.” ~ The creators have gathered dozens of medical and wellness leaders to cast an unflinching eye at end of life and created an uplifting interactive adventure that transforms this seemingly difficult conversation into one of deep engagement, insight, and empowerment. ~ Dr. Ira Byock is a leading palliative care physician, author, and public advocate for improving care through the end of life. ~ Her book, What Really Matters: 7 Lessons for Living from the Stories of the Dying, details her experiences as a hospice physician. Her book, The TAO of Death: The Secret of a Rich & Meaningful Life provides reflective wisdom and spirituality of the dying process. ~ Resources and inspiration for the end of life. ~ Their mission is to create conditions in which people: plan ahead, make their peace, understand that it is okay to die naturally, and make educated choices, which allow them to pass away peacefully and comfortably surrounded by those who love them most. ~ A website that assists with making medical decisions for yourself and others, talk with your doctors, and get the medical care that is right for you. ~ The Coda Alliance is dedicated to helping you comfortably deal with one of life’s most difficult situations—starting your end-of-life conversation. Check out the “Go Wish Game.”

Forms/Planning for Death ~ MyDirectives makes it easy to create a state-of-the-art emergency, critical, and advance care plan. ~ CaringInfo, a program of the National Hospice and Palliative Care Organization, provides free resources to help people make decisions about end-of-life care and services before a crisis.

Palliative Care and Hospice ~ Information and resources for palliative care. ~ National Hospice and Palliative Care Organization, 800-658-8898 ~ AARP End of Life Resources

Grief and Loss Resources ~ 888-687-2277

Funeral/Celebration of Life Information ~ Funeral Consumers Alliance, 800-765-0107 ~ National Funeral Directors Association, 800-228-6332 ~ National Home Funeral Alliance: This is the place to find information about home funerals, including directories for where to find home funeral guides, home funeral education programs, home-funeral-friendly funeral directors, celebrants, clergy, and groups who will help families when needed. ~ Green (or natural) burial emphasizes simplicity and environmental sustainability. The body is neither cremated nor prepared with chemicals such as embalming fluids. It is simply placed in a biodegradable coffin or shroud and interred without a concrete burial vault. The grave site is allowed to return to nature. The goal is complete decomposition of the body and its natural return to the soil.                                   Cremation Association of North America. Provides information on flame-based cremation and water based cremation/alkaline hydrolysis. Funeralwise describes the cremation process in detail. Describes alkaline hydrolysis and gives information about what US states offer it. ~ Green Burial Council believes burial is “green” only when it furthers legitimate environmental and societal aims, such as protecting worker health, reducing carbon emissions, conserving natural resources, and preserving habitat. ~ Green Burial Naturally: State-By-State Where, How, and Why to Choose Green Burial. ~ Their mission is to provide a meaningful Legacy Journey® experience to help individuals and families live their lives with intention and share their values, wisdom, and generosity with loved ones and future generations.


Caregiving Essentials: What You Need to Know to Keep Seniors Safe at Home

Information online about Falls Prevention by the National Council on Aging

National Council on Aging Care’s fact sheet

The Go Wish Game

How to request a credit freeze for the deceased

Virtual book club that explores death and the afterlife through books-monthly book suggestions, includes teleconference with author at end of month


Perhaps a few of these resources called to you. To read a more in-depth review of each book, visit and follow Lisa on Goodreads. If you have found or read any books or articles that you believe would be good additions to this list, please contact me. This resources list is ever-expanding and updated thanks to the suggestions of my readers and further research since the book’s publication.